Patient Advocacy Platform
Seen. is a resource for people navigating complex, invisible illness, whether you have a diagnosis, are still searching for one, or have been told nothing is wrong when your lived experience shows something clearly is.
Recognition
You don't need every symptom. If any or all of this list lands, Seen. is for you.
Conditions Seen. Serves
The points of a constellation are distinct conditions that share biology, often appear together, and amplify one another in ways the medical literature is only beginning to map.
POTS · Secondary POTS · Autoimmune POTS · Dysautonomia · Orthostatic Hypotension · Neurocardiogenic Syncope · Inappropriate Sinus Tachycardia · Small Fiber Neuropathy · Long COVID / PASC · Gastroparesis · MCAS · Mast Cell Activation Disorder · Mastocytosis · Hereditary Alpha Tryptasemia · Idiopathic Anaphylaxis · Histamine Intolerance · Chronic Urticaria · Eosinophilic Esophagitis · IBS · SIBO · Endometriosis · Interstitial Cystitis / Bladder Pain Syndrome · Vulvodynia · Dysmenorrhea · PMDD · PCOS · Uterine Fibroids · Hashimoto's Thyroiditis · Lupus · Rheumatoid Arthritis · Lyme Disease · HSD · hEDS · EDS · Marfan Syndrome · Loeys-Dietz Syndrome · Mitral Valve Prolapse · Raynaud's Phenomenon · Cervicogenic Headache · Craniocervical Instability · Spontaneous CSF Leak · Tethered Cord Syndrome · Chiari Malformation · Migraine · Vestibular Migraine · Fibromyalgia · Central Sensitization Syndrome · CRPS · NDPH · Occipital Neuralgia · TMD · Medication Overuse Headache · ME/CFS · Sjogren's Syndrome
Everything on Seen.
Every section of Seen. is built around a specific need. Start anywhere. All of it is free to read.
AboutWhy I Built Seen.
Why Seen. exists, who built it, and what I commit to. Written by a patient who lived it and comes from a family of physicians.
The Science
The four overlapping mechanisms behind this condition cluster, explained in plain language and grounded in peer-reviewed research.
Research Library
28+ peer-reviewed sources across 7 categories, with DOI links and researcher profiles. Bring these to your physician. The science is real and it is growing.
Resources
Patient organizations, specialist finders, vetted communities, dietary guides, tools and trackers, and books. Curated for people navigating this specific constellation.
Symptom Tracker
Log symptoms, triggers, and medications daily. Access a comprehensive symptom library organized by body system. Watch patterns emerge over time. Export physician-ready data. Everything stays on your device, nothing on our servers.
~30 yrs
Average time to MCAS diagnosis from symptom onset
4
The four mechanisms at the heart of Seen. See the science ↗
200+
Symptoms documented in plain language on Seen.